Dear, we are a family of 6, we have 4 children, we live in a non-profit apartment, we are a family in which only the husband is employed. Many things have happened at home, we barely survive the month, the costs are very high, almost the whole salary goes to bills, we live on social security and child benefit. There is a lot of shortage at home of food, hygiene, clothes. The children are growing up, they want clothes, shoes, food, we buy a lot of food before the expiration date and we cook a lot at home, it is potatoes, rice, pasta, soups, but it is difficult. The youngest daughter Sofija got sick, she has a very rare disease, OTC, metabolic disorder, requires a strict diet, low-protein products that are expensive, we buy them online, the girl is not allowed to eat almost anything except her food, she has a stoma, she is fed with pureed food, she gets a lot of therapy every three hours, I go to school every three hours, I feed my girl every three hours, it is very difficult, her health is at risk if she does not get timely therapy and food. At home, we try very hard so that Sofija does not feel different, that she is the same as everyone else The other children, unfortunately, are not allowed to play sports because of their stoma, they are not allowed to go to the swimming pool. Now, first graders go to the swimming pool and many are old, why are they not allowed to eat sweets, regular bread, meat, it is very difficult at home, it is a very difficult struggle that we have to overcome. The other children are hardworking, they are doing well in school, they are not demanding, they know what the situation is like at home. Thank you very much, I hope you will read my story.